There is a short story called the Loneliness of the Long Distance Runner. Perhaps there should be a story about the Loneliness of the Unpaid Carer.
If you are not careful being a carer can isolate you from the outside world. I care for my wife Claire who due to chronic debilitating pain is stuck in her bed we live in a 2 story house and don’t have a stair-lift She is in the bedroom all the time unless there is a need for her to come down the stairs for an appointment. So when she manages to sleep which can be during the day
You have to cancel things at the last-minute so friends tend to stop inviting you. However I have found a way to keep sane and active and have what I hope is a positive effect on both my own local community and the wider community of my fellow carers and indeed the public in general.
I didn’t set out to do what I did it just sort of happened. I joined Facebook and got involved in Carers Campaigns. and the rest is History as they say.
Having to fight for yourself and the person you care for on a daily basis is great help when you campaign on a local and a National Level. Being able to fight for other people give me an outlet to fight and gain the successes at a higher level when you don’t always get them for yourself.
If I can help one person cope with being a carer or seek help when they need it and felt it would be a weakness then that is what I want to achieve.
I want to raise awareness not only of carers as a whole but of the people they care for.