If you can make it, come along to the petition hand-in. The more of us that are there, the more impact we can have. Here’s what you need to know:
When: 19th Febuary 2015 @ 3:00pm Where: NHS Borders
TD6 9DA Extra info: It is not envisaged that this will last any longer than 30 minuets and press will be invited so a big turnout would be great this petition is about People not buildings so please come along.
Its been over a week since I last posted and other than some reductions in the swelling in Claire’s legs there is really no change in Claire’s physical health. She is however so much happier to be in the living room as opposed to the bedroom up the stairs. We are still no further forward in getting a “Hospital Bed”. This would make life so much easier as the bed she is using is very low. So need to get one Not sure how to yet. The doctor has not been in touch either considering they referred Claire to the hospital I would have thought they might have wondered is she still had the symptoms which by the way she has.
I am enjoying Claire being down stairs its just a case of working out a routine sometimes takes us a while when there is a change. We are getting there though. Its great spending so much time with Claire as not only is she my wife she is my best friend and I didn’t realise how much I had missed just being able to sit and watch TV with her. Being able to do this again has helped us both so much.
I am sometimes surprised at why people think I blog.
Recently I was told by a MSP “I have great Sympathy for what you do” This made me wonder if people thought that is why I blog to look for sympathy. Well to clear that up NO I DON’T.” I have never looked for Sympathy for what I do that’s not the type of person I am so anyone who thinks that has not been reading my blogs properly.
The whole point of this Blog is to speak up for carers and not seek sympathy for them but more Respect and Understanding. Some people don’t get it and when its an elected representative and a Member of the Scottish Government that in my humble opinion makes it worse. I am not going to Name the MSP as this is not about.
I am not seeking to stand as a candidate for Council, Holyrood or Westminster and have no plans to do so in the for see able future. I have my own political opinion and it is my own. I know that life is not Black and White Neither is it Red verses Blue there are other shades of politics and Football available. However we must also work together and so over the past few years I have spoke to people from all political parties to further the Understanding of Carers in Scotland.
So if you haven’t read this Blog before please read some and hopefully you will have a better understanding of carers and indeed the people they care for.
I have not posted for a while for a number of reasons none of these reasons is that I had nothing to say. Those of you who know me will know I never have nothing to say. I have however found it hard to be positive recently.
It is hard to be positive when not a lot of positive things are happening. I watch every day as Mrs G is in pain and I can do nothing about it. I say platitudes like “its going to be OK” Its hard to keep this up for a long time when Mrs G picks up one infection after another and does not get a break. Carers are not immune to these infections too and its hard to stay positive when you are not feeling well either. However I have to try as no matter how unwell I may feel Mrs G feels worse as she has her daily pain to deal with too and if she can’t use her distraction methods to deal with the pain its worse.
So how do you stay positive ? the simple answer is you don’t but you try.
When Mr G became my Unpaid Carer, there was, he felt, quite a stigma about it, especially a man giving up a well paid job which put “his family on benefits”. It took him some time to get used to his new role.
I had always been a stay at home Mum, cooking up to four different dinners a night, cleaning the house, making the beds, as you will all know the list goes on and on.
So not only did Mr G have to do some of these tasks, the children had to get used to Daddy cooking one meal for everyone and asking them to keep their rooms tidy and make their beds themselves. As Mr G also had to help me do things I could no longer do.
I don’t know if he remembers the day when he felt inside he was an Unpaid Carer but I remember it vividly. It was after an “heated discussion” with one of my consultants. He managed to change the way she spoke to me and ever since then Mr G has worked hard to bring the role of an Unpaid Carer to the fore and of course he also works tirelessly helping me both physically and emotionally and tries to raise awareness for the Caree.
I may be wrong, but I think Mr G works so hard to help raise awareness of Unpaid Carers, as it was so hard for him when he had the role thrust upon him. Mr G just wants other Unpaid Carers to know they are not alone.
My husband has learnt to do so many new things since my illness began, he is now, of course perfected the art of laundry, got fed up of my love of washing dishes, so we acquired a dishwasher. The art of folding and hanging his laundry to such a perfect degree, that my second love, ironing, is hardly ever required.
Mr G’s cooking in all reality beats mine hands down so damn much. His soup making, stews, roasts, bread making and to top it off his bloody jam making skills, make me so damn jealous.
His hunting down bargains while shopping also beat mine I am ashamed to admit. Unless he shops with our eldest daughter, his weekly shopping means I can actually save money!!
Now he has yet again excelled at another new talent, Mr G to my utter and total amazement, not only cut my hair, he managed to thin it quite a bit also.
Although he has amassed all the above new talents, his biggest and best new talent his being an unpaid carer. He finds this a shock that he is able to care for me. I however never ever doubted he could do this, as I have always trusted in him and please believe me that I have total respect in every unpaid carer.
We are all learning every day and as a carer you are always learning as your life adapts day-to-day.
You have to adapt to changes in the NHS, Changes to the health of the person you care for and changes to legislation in benefits and Social Care.
If you’re not used to it you have to learn to be a cook. I really enjoy cooking meals from scratch and we have all benefited from fresh food rather than the Iceland and Farmfoods frozen food. Apart from the health benefits you enjoying food more and getting Claire to eat more and have a healthy and varied diet. I enjoy both the fact that I have created a meal and the fact that other people are enjoying it. I have developed a bit of a keen eye for cooking and find it quite relaxing other than the cleaning up afterwords. I Might post even some of my own recipes at some point.
You have to learn patience now those of you who know me will know I have a long way to go to master this art. I have never been a very patient person but over the years it has improved. I find meditation has improved my patience I am far from reaching Nirvana but I do believe the Zen state exists.
Along with patience you have to learn how to be assertive without being aggressive something else I have still to master completely. There is a fine line between aggression and assertiveness. That’s the part I still have to learn.
I have always been political and Joining the political party at 15 helped me develop into who I am now the encouragement of older people who were not relatives inspired me no end. I Would hate to be a carer and not able to speak up not only for myself but for the person I care for. Fortunately this is something that is not something I have a problem with.
So carers are always having to learn, having to remain calm and not be seen as aggressive. Ah I have a long way to go and the road may be long with many a winding turn but who knows where oops no sorry that he aint heavy he’s my brother. I will keep you posted on my development and please feel free to comment with yours.